The DNR, Funeral Planning, and Time for Me

Today in 2014, I mentioned on Facebook that my mother's horrendous bed wedge arrived (that matched her bedroom walls), that mom's cardiologist wasn't happy with mom's edema, and that I had discovered the DNR (Do Not Resuscitate) and posted it on the side of the refrigerator. That was a handy place, as the kitchen was located just off the entranceway.

The responses I received from my friends to this post were both heartfelt and expansive. Some of my friends went into great detail on how they handled their own parent's DNR and then segued into how their parent sat down to plan their own funerals. My mother did write her obituary, but she was certain no one would come to her funeral or memorial service, so she vetoed that idea. Hospice had other plans, though, and we did get to enjoy a service months after she died. We lost her obituary, though. That's another story.

The cardiologist was a contentious issue, because hospice wasn't happy with the number of visits that he wanted my mother to add to her schedule. Hospice, at that time and place, was into providing palliative care to make the patient comfortable. The cardiologist was intent on keeping my mother alive, which was going to prove to be a losing battle.

Interestingly, both the cardiologist and hospice agreed that my mother should continue to see her nephrologist, the doctor who specialized in the diagnosis and treatment of kidney disease. I think hospice felt it would be good to keep tabs on that one kidney mom had to know more in advance about when her kidney might give up the ghost. I agreed. Cartainty in the face of uncertainty, for me, was vital at the time. That was a healthier compromise for us all.

Another friend wanted me to find a massage therapist for me, not for my mother. But, as I told her, anytime I left the house, I could count on my mother having an emergency situation. I was thankful for mobile phones, but I still didn't have much freedom.

The one joy I allowed myself to have in my trips back and forth between Virginia and home was to stop at the Blenko Glass Factory in Milton, Cabell County, West Virginia. I would pick up one piece, resulting in several dozen pieces that I eventually sold on eBay. The piece I purchased on my last trip to Virginia that ended with mom's death was a rare one. White frosted glass with dimples. I still have that piece.

I took the photo above during one pit stop at Blenko. It was a very colorful place, and I always enjoyed browsing all the interesting shapes and textures. I do miss those visits.

Some Days are Quiet

Caregiving is a roller coaster, with days that go up and down. On some days there is nothing to report, like today. That's when it's time to sit back and reflect rather than conjure up something out of thin air. I'm sure I'll be here tomorrow with news from the past.

The Unwanted Bed Wedge and Donations

Today in 2014 I wrote that my parents decided to delay the arrival of the hospital bed, because that decision seems so final. Mom chose, instead, to obtain a wedge for the bed she shared with dad so she could sleep with her chest elevated to help her breate better. What a mistake that decision turned out to be. That wedge was huge, she used it once, and it stayed with us until my father died. 

The wedge was blue to match the bedroom walls, removeable fabric-covered foam, about 27° angle, and it took up more than 1/2 of my parents' queen-sized bed. When mom used it, she said the bottom of her spine hurt. I knew what she meant, and that position wasn't the best for her, or for anyone for that matter. But, since hospice ordered it and my parents didn't pay for it, they kept it.

Since that wedge stayed past dad's demise, it was up to me to decide what to do with that durn thing. I donated it. I hope it found a good home.

Speaking of donations, plan now to decide what you want to pass on to your friends, family, children, etc. and which things need to be donated. I had to make those decitions alone for both parents, as my siblings live out west and weren't part of the day-to-day plans and outcomes regarding either parents' deaths. My parents didn't say a word about most of their items, and I didn't know to ask. I wish I did. My life would be so much easier.

Even now, many of my parents' belongings are sitting quietly down in my basement, waiting for me to decide what to do with them.

Hospice Arrives and Our Brains Hurt

On this day, 12 January in 2014, my parents and I were introduced to hospice for the first time in our lives. Although my parents had already lost their parents, the only experience they had with hospice (that I remember) was when dad's brother engaged with hospice to help take care of his dying wife in 2007. We were intrigued, and lodged that possibility of help in the backs of our brains for future use. Now was the time to see if it would work.

I noted in a Facebook post that hospice nurses drilled my father and I with our parts in taking care of mom. Our days would be filled with counting sodium mg (3 grams per day max), liquids (no more than 1,500 ML per day), tactics on how to shoot saline into various tubes protruding from my mother's body, how to change dressings, and learning how to operate two different oxygen systems. Dad did panic once when he couldn't replace the cap correctly on mom's bile duct catheter, but he eventually got it. He also cooked most of the evening's dinner and I picked up a baked chicken at Kroger.

I don't know how many chickens we consumed during mom's illness and especially after she died, but that's a story in itself. I pray for all the chickens.

The man who brought the oxygen was entertaining. Dad had a great time talking with him. The parents had a gas fireplace, and the oxygen man was especially leery of that contraption, but dad promised they wouldn't turn it on while oxygen was in the room. We eventually stored the tanks in the corner of their master bedroom, and we "hid" the current oxygen tank in use behind the easy chair in the living room.

Now we waited for all the "contraptions" to arrive, including a hospital bed, shower chair, wheelchair, and walker. Mom was on cloud nine with all the attention, but when everyone left she became surly about the incoming items, especially the hospital bed. Dad insisted on it, though, because of all the conveniences it offered. Mom was insistent on where to place it. It would go into the living room, where anyone who visited could see it.

That hospital bed eventually became the center of attention.