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| Noor Ayesha, her husband, and daughter. |
"Noor Ayesha died Sunday after battling the rare and deadly cholangiocarcinoma, better known as bile duct cancer.
"The 26-year-old gave birth in February 2023, shortly after her Stage 4 diagnosis. Ayesha had hoped to extend her life so she could spend as much time as possible with her baby daughter. A drug, called Pemigatinib and sold under the brand name Pemazyre, was key to achieving that.
"As it wasn’t covered in Ontario, the community rallied to help cover the drug’s $15,000 per month price tag.
"Just last month, there was a breakthrough in the Ayesha’s fight for the cancer drug.
"The province finally decided to fund the Pemigatinib on a case-by-case basis.
'“This came from promising new, real-world evidence as well as patient and family advocacy that prompted the manufacturer to make a resubmission to the CDA-AMC for the treatment of Cholangiocarcinoma (CCA),” read a statement from Hannah Jensen, a spokesperson for the Minister of Health."
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